Shelter From The Storm: Caring For A Child With A Life-threatening Condition by Joanne M. Hilden - PDF and EPUB eBook

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critically ill and unlikely to survive. A recent Harvard University study on pediatric end-of-life care has shown that the...

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Details of Shelter From The Storm: Caring For A Child With A Life-threatening Condition

Exact title of the book
Shelter From The Storm: Caring For A Child With A Life-threatening Condition
Book author
Joanne M. Hilden
Book edition
Paperback
Number of pages
240 pages
Language
English
Published
December 18th 2002 by Da Capo Lifelong Books
File size (in PDF)
960 kB
Shelter From The Storm: Caring For A Child With A Life-threatening Condition

Some brief overview of book

critically ill and unlikely to survive. A recent Harvard University study on pediatric end-of-life care has shown that the medical community is failing such children and their families. Indeed, in their effort to be ever-hopeful and cure-oriented in the face of a child's terminal illness, they neglect to advise parents on the basics of emotional support for all family members, pediatric pain medication, and the need for making plans and worst-case preparations.Based on the National Advanced Illness Coordinated Care program and the stories and advice gleaned from co-author Joanne Hilden's years of work as a pediatric oncologist, Shelter from the Storm fills this advice-and-caregiving void.

A compassionate road map to what the family may have to face, what they may be asked to decide, and how they might want to involve their child in the decision-making, Shelter from the Storm will help parents and caregivers make informed, loving, and protective choices on behalf of their children in the most trying of times.